ME: An Alternative View

The following website belongs to a friend of mine, who has an alternative and controversial view on what ME really is:

http://aboutmy.me/

I think that in my case, this probably applies, and I am working on the basis that thyroid and adrenal issues have not been adequately or thoroughly investigated by my doctors.

But I think that the thyroid and adrenal connection is only one part of the puzzle – it doesn’t fit the profiles of the outbreaks of mass ME such as the Royal Free case, in which dozens of patients and nurses came down with the same illness.

But it is definitely an issue that must be properly investigated before ME can be legitimately diagnosed.

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2 thoughts on “ME: An Alternative View

  1. Hello,

    I am a student journalist from the UK, currently studying at University of Technology Sydney. I also suffer from CFS.

    I am writing a colour story/feature on recent scientific discoveries linked to CFS such as the study (April 2014) where evidence was found that CFS sufferers have neuroinflamation.

    I have experienced the stigmatism attached to CFS so I am writing this story to discover what it means to people with CFS and the positive affects scientific evidence can have. I am also interested in those involved in the research and raising awareness process to hear their opinion on the fact that there is now scientific evidence linked to CFS.

    I wondered if I would be able to speak to you for my story?

    Kind Regards,

    Emma Louise

    Like

  2. It Defiantly was an alternative view (Claiming CFS doesn’t exist).

    The process for being diagnosed for CFS is to have countless number of blood tests done and for GP and specialists to check them, before you are even sent to a specialist (Well that is the case in Bristol any way). Whilst it appears your friend had a misdiagnosis it does not mean the condition is not real, and I think calling it a myth is quite offensive and simply incorrect.

    I think one of the most important things is to get a knowledgeable, compassionate and supportive GP (Regardless of what you are suffering from), who will listen to you and preform more tests if you don’t feel a proper diagnosis has been given. My advise to anyone is to find a good GP if you don’t feel like yours is taking you seriously or try a different one in the surgery or even switch surgery all together.

    Whilst I think everyone is entitled to there own opinion, I think it needs to be said that CFS is a real condition (Even if it wasn’t what your friend suffered from) and through effective treatment (Nutrition, CBT, Counselling, GET and general life pacing) people do get better.

    Like

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