Fob-off Diagnosis (again)

About a month ago I decided to move GP surgeries to the other one in town, because after three years of being told – without any adequate process of exclusion – that I have ME/cfs with Fibromyalgia (although I have never seen a rheumatologist to confirm that diagnosis) and that nothing could be done for me, I had decided that enough was enough.

The first GP I saw at the new surgery seemed very young and inexperienced, and in fact he had never heard of one of my diagnoses – PCOS – (Poly-cystic Ovary Sydrome), although it is a very common condition, and he actually had to look it up on his little screen!

I discussed with him that ME is an illness that should only ever be diagnosed through a process of exclusion and I believed that had not taken place. I suggested a number of things I wanted testing, including pernicious anaemia and hashimoto’s thyroiditis, both of which run in the family. He stated that “everybody thinks it’s thyroid, and it never is”, which did not inspire me with confidence at all.

The next GP I saw was a very popular lady, and for good reason. I have never encountered such a friendly, compassionate doctor who was so willing to co-operate. She immediately referred me to Neurology to rule out MS and to check for possible pituitary damage after a head injury some years ago, and to Rheumatology to rule out Rheumatoid Arthritis and Sjogren’s, and with the promise of more referrals to come. Sadly, this wonderful doctor went on maternity leave the next week, so I will not see her again for a year or more.

Today I saw a third GP, who I assume was a locum filling in for the maternity leave. I had prepared a very thorough and detailed letter explaining my case and some of the things I wanted testing and why. This GP read the letter and immediately picked it apart dismissively, becoming increasingly rude and patronising, telling me that I shouldn’t be resistant to the ME & Fibro diagnosis, and that I appeared to be “angry for some reason”. It felt as though I had gone back ten years. I left her office in tears.

I am actually too exhausted from crying to go into detail about what she said and how upset and angry I am. But I can tell you that I feel more desperate than I have ever felt.

The previous blood tests for TSH (computer) says “no” so without an intelligent operator, I am faced with a brick wall. She actually said to me “some conditions can’t be helped“.

How is that possibly acceptable?

And I really just don’t know where to turn.

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