I finished a Thing!

My whole life I have been known for starting but not finishing. Opening more books, putting 'fingers' in more 'pies', trying to juggle more plates than I can possibly handle. The first person to suggest I might have ADHD was a doctor in 1999 when we thought that our eldest child might have ADHD and …

They’re Civilians! Civilians with Partical Weapons!

Apologies for the rather long hiatus in posting. Life as a full time (mental health) carer has been very taxing indeed, and I have found that my life and 'free' time has no longer been my own and, when I have had free time, I have been too exhausted to use it productively. There have …

Budget Healthcare

I know that we are supremely blessed out of all the world to have a publicly funded healthcare system. I am extremely grateful for it. In the case of my son, it saved his life... but only after almost taking it through misdiagnosis and negligence (see the page above on Type 1 Diabetes). I don't …

Felix qui potuit rerum cognoscere causas

The fact that I am up (still up) at 4:25 am, playing with my blog and updating my Goodreads/ Shelfari/ LibraryThing accounts worries me somewhat. Yes, I'm tired, but I'm also so horribly buzzy that I know there is very little point in me going to lie down, because I would not be likely to …

Fob-off Diagnosis (again)

About a month ago I decided to move GP surgeries to the other one in town, because after three years of being told - without any adequate process of exclusion - that I have ME/cfs with Fibromyalgia (although I have never seen a rheumatologist to confirm that diagnosis) and that nothing could be done for …

Up-rising against DKA

My son was repeatedly mis-diagnosed over a period of several years (from age 3-9). Approximately one year later (aged 10 in 2012) after moving house to a different health authority, my son was rushed into hospital severely dehydrated and in DKA - Diabetic keto-acidosis - a life-threatening complication of Type1 Diabetes that is wholly preventable …

Type1 Annual Review

On Friday we had a Paediatric Diabetes Clinic appointment and Annual Review. It should have been in January, to give you an idea of how shambolically incompetent our current healthcare providers are at the outset. Ds12’s hba1c, the average measurement of blood sugar over the last three months, has risen since we have been on …

Annual Review

On Friday we had a Paediatric Diabetes clinic appointment and Annual Review. It should have been in January, to give you an idea of how shambolically incompetent our current healthcare providers are at the outset. Ds's hba1c, the average measurement of blood sugar over the last three months, has risen since we have been on …

ME: An Alternative View

The following website belongs to a friend of mine, who has an alternative and controversial view on what ME really is: http://aboutmy.me/ I think that in my case, this probably applies, and I am working on the basis that thyroid and adrenal issues have not been adequately or thoroughly investigated by my doctors. But I …

ME Awareness Month

The month of May is "ME Awareness Month", with May 12th being the particular day, and I have also seen the week starting May 11th designated as ME awareness week. ME is classified by the World Health Organisation as a neurologically-based disease. It is of unknown cause, although there are several theories including viral and …